Involving the public in your research
Public involvement is where people are not just the subjects of research but are working with researchers to plan, manage, carry out and present research.
We believe that public involvement makes research more relevant, more reliable and more likely to change practice.
Find out more about public involvement in research.
If you are a researcher working in health and social care research in Wales, Health and Care Research Wales can:
- help you to find members of the public to be involved in your research study through the public involvement community. The community currently has over 300 members with a wide range of interests within health and social care;
- give you information and guidance on how to involve the public in your research.
Definitions of involvement, engagement and participation
Where members of the public are actively involved in research projects and research organisations. The research is carried out with or by members of the public, for example, reviewing information given to patients about research.
Where information and knowledge about research is provided and shared, for example, at a research conference.
Where people take part in a research study, for example by giving a blood sample or completing a questionnaire.
How to access support
To find out more about involving the public in your research or to discuss your requirements, contact the Public Involvement and Engagement Team: 02920 230457 / firstname.lastname@example.org
Cardiff University School of Medicine have produced a film aimed at researchers which highlights some of the many benefits of involving the public in research. It describes ways in which you can involve the public in the research cycle and effectively signposts researchers to the support, guidance and resources available in Wales - watch the Public Involvement in Research film.
If you are a member of the public interested in getting involved in research, there is information on registering with the public involvement community in our Public section. The community currently has over 300 people registered who are supported to become involved and who are regularly communicated with about involvement opportunities.
You may find the following public involvement resources useful:
- UK Standards for Public Involvement in Research
Health and Care Research Wales forms a part of the UK-wide partnership that has been developing a set of standards and indicators for public involvement in research. The standards aim to improve the quality and consistency of public involvement in research. Find out more and download a copy of the standards.
- Researcher request for public involvement support
If you want to involve patients, service users, carers or members of the public in your research, please complete our researcher request form
- Involvement Cost Calculator
This resource, produced by INVOLVE, provides practical advice on how to budget for involving the public in research.
- Automatic Readability Checker
An external resource that will let you know the reading level and grade level of your text and help you to determine if the audience can read your writing
- Benefits Advice Service for involvement
A service which can provide advice about the impact of receiving payment for time on members of the public who are in receipt of benefits.
- Patient and public involvement (PPI) toolkit for researchers
A Cancer Research UK resource for learning about, planning and carrying out involvement activities during your research.
- Public engagement: a practical guide
A practical guide for researchers on involving the public in working out how to communicate research findings
- Appointment checklist for researchers
A checklist produced by the Public Involvement and Engagement team to assist in progressing with the next steps for meaningful public involvement
- Next steps handbook – useful guidance for all researchers
The next steps handbook has been developed for researchers including, but not limited to, those who have attended the face-to-face ‘First Steps: members of the public and researchers working together’.
- European Patients' Academy website
Information, resources and guidance to support the integration of patient involvement in medicines research and development
- Guidance for Researchers: Feedback
A guide providing researchers advice on the best ways to ensure patients, carers, service users and members of the public contributing to their work are kept informed and their input is formally acknowledged
- Evaluating public involvement in research
A guide to four approaches to evaluating public involvement in research, providing descriptions of each approach to help you select the one that is best for your research.
- Code of Conduct template
This template can be adapted and populated to meet the needs of your organisation
- NIHR co-produced online PPI course
National Institute for Health Research's (NIHR) co-produced interactive online course for researchers, research managers, funders and public reviewers to help share knowledge of patient and public involvement (PPI). It provides guidance on a variety of roles and researchers may also find this resource useful when writing research funding applications.
- Being inclusive in public involvement (PI) in health research
What are some of the things to think about to become more inclusive in public involvement in health research? How do we develop inclusive research communities? This document includes a helpful series of prompts for researchers, and for those whose job it is to support public involvement in health research (practitioners).
- The three categories of involvement
Health and Care Research Wales have developed three categories for public involvement opportunities.
- Public involvement flyer
Designed to introduce the idea of becoming involved with health and social care research
- Health Research Authority (HRA) Best practice in public involvement
This guidance sets out how you should present your information on public involvement within the Integrated Research Application System (IRAS), in a way that is most useful to Research Ethics Committees (RECs).
- EUPATI Toolbox
The Toolbox includes articles, presentations, videos, and factsheets around all aspects of a medicine’s development process, including how to involve patients in this process (external website)
- How to write in plain English
- How to write in plain Welsh
Bangor University Welsh language support service for researchers
- Problem Solving Procedure