Message from the MRC Centre for Neuropsychiatric Genetics and Genomics
May 23 saw the Cardiff edition of Parkinson’s UK Research Roadshow taking place at Hadyn Ellis Building. It was a UK wide event, inviting patients and family members to hear about exciting research taking place at each of the chosen locations and providing information on how involvement in research could help move towards better treatments and ultimately a cure.
Working closely with Dr Emma Lane, Senior Lecturer in Neuropharmacology and BRAIN Unit Principal Investigator, the event comprised of over one hundred people with Parkinson’s disease and their family members.
The day consisted of a mixture of lectures, talks, Q&A’s and more intimate table discussions which allowed patients to ask researchers any questions they wanted answers to. Combining public engagement activities with public patient involvement proved a huge success.
The BRAIN Unit hosted a stand offering information about BRAIN Involve, their public and patient involvement programme and invited researchers to talk about their work.
The overarching theme of the day was a focus on the importance of public and patient involvement in research, with members of the South Wales Parkinson’s Research Interest Group emphasising how much more we still have to learn since the discovery of Parkinson’s 200 years ago. Dr Emma Lane delivered an enthusiastic and informative talk about cell transplantation and public and patient involvement in Parkinson’s research. She explained, from a questionnaire answered by 500 people, Dr Lane discovered there was an overwhelming willingness of patients to become involved in research.
For further information about BRAIN Involve, visit brain.wales/get-involved/brain-involve/
Tom Phipps, Chair, Bristol and District Branch Parkinson's UK
"Research participation - the trials of a guinea pig"
Dr Kathryn Peall, Clinical Senior Lecturer, Cardiff University
Dr Emma Lane, Senior Lecturer in Neuropharmacology & BRAIN Unit Principal Investigator, Cardiff University
"From rats to people and back again - public patient involvement in cell transplantation"
For more information visit the Parkinson's UK Cymru web page.